Useful Links

Further Resources

Macmillan
www.macmillan.org.uk

A variety of information – booklets and fact sheets – about cancer, cancer treatments and its effects on life and work can be ordered from Macmillan. To order, visit be.macmillan.org.uk. or call 0808 808 00 00

You can also download from here the following useful pdfs:

Managing cancer in the workplace

An employers guide to supporting staff affected by cancer

MAC12891Managingcancerinworkplacee0320131022

Work and cancer

A guide for people living with cancer

MAC11675WorkcancerE05

Working while caring for someone with cancer

A guide to coping with work when you are caring for someone with cancer

MAC11688Workingwhilecaringe0420131022

Self-employment and cancer

A guide for the self-employed about work and cancer

MAC12818SelfemploymentandcancerE3PDF20140701

Help with the cost of cancer

A guide to benefits and financial help for people affected by cancer

MAC4026HWTCOCe1320150501

Your rights at work

A guide to your employment rights including carers’ rights

Yourrightsatwork_2013_2

Key websites

Cancer Research UK
www.cancerhelp.org.uk

Contains patient information on all types of cancer.

National Cancer Institute – national Institute of Health – USA
www.cancer.gov

Gives information on cancer and treatments

Dept for Work and Pensions
www.dwp.gov.uk

Covers a number of issues including work, benefits, retirement and disability.

Directgov
www.direct.gov.uk

The UK government’s digital service for people in England and Wales.
Includes details on how to contact your local Jobcentre.

NHS Choices
www.nhs.uk

The country’s biggest website and gives all the information you
need to make decisions about your health.

NHS Direct Online

www.nhsdirect.nhs.uk

NHS health information site for England

NHS 24 in Scotland

www.nhs24.com

NHS health information site for Scotland

NHS Direct Wales

www.nhsdirect.wales.nhs.uk

NHS health information for Wales

Patient UK

www.patient.co.uk

Provides non-medical people in the UK with information about health and
disease. Also reviews and links to many health and illness related websites.

TUC
www.worksmart.org.uk

Has information about employment and disability rights.

Other useful organisations

Access to Work
South East and East England/London
020 8426 3110
Scotland and Northern England 0141 950 5327
South West England, Wales and Central England 029 2042 3291
www.gov.uk/access-to-work

Provides advice and support to people with long term health conditions
and their employers to help meet the costs associated with work-related
obstacles.

Access to Work (Northern Ireland)

www.nidirect.gov.uk/access-to-work-practical-help-at-work

Gives support and advice to employees with disabilities and their employers.

Advisory, Conciliation and Arbitration Service (ACAS)
Helpline 08457 474 747

www.acas.org.uk

Gives advice to employees and employers to help improve working life and relations.
Offers information, advice and training.

ACAS also publish a very helpful guide on dealing with bereavement

Managing bereavement in the workplace – a good practice guide
Developed in partnership with Cruse Bereavement Care (see below) and many other organisations.

Acas Managing-bereavement-in-the-workplace-a-good-practice-guide

Evenbreak
402 Metro Central Heights
London SE1 6DX

Tel: 0845 658 5717
www.evenbreak.co.uk
Evenbreak is a specialist online job board which can help you find work with employers who are inclusive and value their staff.

Equality Advisory Support Service
Freepost FPN 4431
Tel 0808 800 0082
Textphone 0808 800 0084
www.equalityadvisoryservice.com

Promotes equality and provides information to people about their rights.

Equality Commission Northern Ireland
028 9050 0600
www.equalityni.org

Aims to advance equality, promote equality of opportunity, encourage good
relations and challenge discrimination through promotion, advice and enforcement.

My Doctor Londonwww.mydoctorlondon.co.uk
tel 020 3026 6254
email enquiries@mydoctorlondon.co.ukProvides a range of high quality, affordable and convenient Medical Services in Central London, including GP appointments, blood tests, prescriptions, imaging and specialist referrals. We can provide medical and occupational health advice regarding work-related issues for people affected by cancer.

Financial, legal advice and insurance

Benefit Enquiry Line Northern Ireland
Tel 0800 220 674
Textphone 0800 243 787

www.nidirect.gov.uk/money-tax-and-benefits

Provides information and advice about disability benefits and carers’ benefits in Northern Ireland.

Citizen’s Advice
Find contact details for your local office
in the phone book or at citizensadvice.org.uk
Find advice for the UK online in a range of languages at adviceguide.org.uk

Citizen’s Advice Bureaux provide free, confidential, independent
advice on a variety of issues including financial, legal, housing and employment.

Citizens Advice Scotland
www.cas.org.uk

Department for Work and Pensions (DWP)

Disability Benefits Helpline 08457 123 456
Textphone 0845 722 4433

Personal Independence Payment Helpline 0845 850 3322
Textphone 0845 601 6677

Carers’ Allowance Unit 0845 608 432
Textphone 0845 604 5312

 www.gov.uk/browse/benefits

Manages state benefits in England, Scotland and Wales.

Disability Law Service
A charity providing information, advice and assistance to those with disabilities (including cancer as understood by the Equality Act) and their carers. They offer a full service in relation to discrimination in the workplace and handle employment claims.
Tel 020 7791 9800
www.dls.org.uk

Law Society
113 Chancery Lane
London WC2A 1PL
Tel 020 7242 1222

www.lawsociety.org.uk

Can provide details of solicitors in England and Wales

Law Society of Scotland
26 Drumsheugh Gardens
Edinburgh EH3 7YR
Tel 0131 226 7411
Email lawscot@lawscot.org.uk

www.lawscot.org.uk

Can provide details of solicitors in Scotland

Law Society of Northern Ireland
96 Victoria Street, Belfast
BT1 3GN
Tel 028 9023 1614

www.lawsoc-ni.org

National Debtline (England
Wales and Scotland)
Tricorn House, 51-53 Hagley
Road, Edgbaston,
Birmingham B16 8TP
Freephone 0808 808 4000

www.nationaldebtline.org

A national telephone helpline for people with debt problems. The service
is free, confidential and independent, and the call handlers also distribute
free self-help materials.

Personal Finance Society –
‘Find an Adviser’ service
42-48 High Road, South Woodford,
London E18 2JP
Tel 020 8530 0852
Email info@findanadviser.org
www.findanadviser.org

The UK’s largest professional body for independent financial advisers.
Use the ‘Find and Adviser’ website to find qualified advisers
in your area.

Turn2Us
1 Derry Street
London W8 5HY
Helpline 0808 802 2000
Email info@turn2us.org.uk
www.turn2us.org.uk

A charity providing an online service to help people in financial need
in the UK. Use its website for free to see information about the benefits
and grants available from both statutory and voluntary organisations. You
can often apply for support from the website.

Unbiased

www.unbiased.co.uk

Provides advice about benefits and financial issues. You can also search for
a financial adviser

StepChange Debt Charity

Wade House, Merrion Centre
Leeds LS2 8NG
Tel 080 0138 1111

www.stepchange.org
Provides free debt advice through phone, email,its website and online via live chats with advisers.

Insurancewithwww.insurancewith.com

Insurancewith are a specialist travel insurance provider for those with pre-existing medical conditions including cancer.

Equipment and advice on living with disability

The Blue Badge Scheme (Dept of Transport)
Tel Contact your local authority

www.gov.uk/browse/driving/blue-badge-parking
(England, Scotland and Wales)

https://www.nidirect.gov.uk/articles/blue-badge-scheme-guide-badge-holders
(Northern Ireland)

The scheme allows people with severe mobility problems to park close
to their destination. The scheme is administered by local authorities who
deal with applications and issue badges.

Disability Rights UK
12 City Forum, 250 City Road
London EC1V 8AF
Tel 020 7250 3222

www.disabilityrightsuk.org

A national charity which works to improve the living standards of disabled
people. Provides information about benefits and disability rights.

Disabled Living Foundation
380-384 Harrow Road
London W9 2HU
Helpline 0845 130 9177
Email helpline@dlf.org.uk
www.dlf.org.uk

A national charity that provides free, impartial advice about all types of disability
equipment and mobility products through its helpline, website and demonstration
centre.

Motability Scheme

Warwick House, Roydon Road
Harlow, Essex, CM19 5PX
Tel 0845 456 4566
Minicom 9845 675 0009

www.motability.co.uk

Enables disabled people to exchange their higher rate mobility component
of Disability Living Allowance or their War Pensioners’ Mobility
Supplement to obtain a new car, powered wheelchair or scooter.

Advice about appearance and nutrition

www.beautydespitecancer.co.uk

Provides advice about skin care, hair care, cosmetics and appearance to women affected by cancer and supplies products which can be given as gifts to those undergoing cancer treatment. Also provides more general information about cancer including employment issues.

www.bodysoulnutrition.co.uk

Provides useful information about nutrition for a healthy lifestyle

Support for Carers

Carers UK
Tel (England, Scotland, Wales) 0808 808 7777
Tel (Northern Ireland) 028 9043 9843
Email advice@carersuk.org
www.carersuk.org

Offers information and support to carers. Can put people in contact with
local support groups.

Carers Direct
Tel 0808 802 0202

www.nhs.uk/carersdirect

Provides information to help carers access the financial help they’re
entitled to, as well as advice on getting a break from caring and
going to work.

Cruse Bereavement Care
PO Box 800, Richmond, Surrey
TW9 1RG
Tel 0844 477 9400
Young person’s helpline 0808 808 1677
Email helpline@cruse.org.uk
Young person’s email
info@rd4u.org.uk

www.crusebereavementcare.org.uk

Provides bereavement counselling, information and support to anyone who has been bereaved.
has a network of branches across the UK.

The Loss Foundation
For information on any of their services you can contact Erin at erin@thelossfoundation.org or 07732-070-972.

For information about their research into complicated or prolonged grief you can contact Kirsten at kirsten@thelossfoundation.org

http://thelossfoundation.org/

The Loss Foundation is a registered charity providing support to people who have lost loved ones to cancer; spouses, family members, friends.

 

Other Useful Cancer Support Organisations

Cancer Black Care
79 Acton Lane
London NW10 8UT
Tel 020 8961 4151
Email info@cancerblackcare.org
www.cancerblackcare.org.uk

Offers a range of information and support for people with cancer from
ethnic communities, their friends, carers and families. Welcomes people
from different ethnic groups.

Something To Look Forward To
Email francesca@somethingtolookforwardto.org.uk
www.somethingtolookforwardto.org.uk

Something To Look Forward To is an award winning social action charity which improves the emotional health and wellbeing of people affected by cancer and cancer poverty in the UK. They provide donated gifts and experiences including cottage holidays, restaurant meals, hotel stays, spa breaks, tickets to attractions, clothes vouchers and much more! They support people with any cancer diagnosis and their friends, families and carers up to one year post last treatment and offer continued support to people with a secondary diagnosis or who are receiving palliative care. Please visit www.somethingtolookforwardto.org.uk to find out more and to access this service.

Ellie’s Friends
The Eleanor Rose Foundation
C/O Objective Productions/2LE Media
Riverside Building
County Hall
Westminster Bridge Road
London
SE1 7PB

Tel: 07969 600673
Email: info@eleanorrose.org
www.elliesfriends.org

Ellie’s Friends is an online platform that enables adults living with cancer to access free and discounted services or products in their area.

Irish Cancer Society
43-45 Northumberland Road
Dublin 4, Ireland
Helpline 1800 200 700
Email helpline@irishcancer.ie
www.cancer.ie

Operates freephone cancer helpline, which is staffed
by qualified nurses trained in cancer care. You can also chat online
and use the site’s message board.

Healthtalkonline

www.healthtalkonline.org
www.youthhealthtalk.org (for young people)

Contains information about some cancers and has video and audio clips of people talking about their experiences of cancer and its treatments.

Leukaemia and Lymphoma Research
39-40 Eagle Street
London WC1R 4TH
Tel 020 7405 2200
Email info@beatbloodcancers.org
www.leukaemialymphomaresearch.org

Dedicated to researching blood cancers including
leukaemia, lymphoma and myeloma. Research focuses on finding causes,
improving diagnosis and treatments and running trials for people with blood
cancer.

Lymphoma Association
3 Cromwell Court
New Street
Aylesbury
HP20 2PB

Tel: 01296 619400
Email: enquiries@lymphomas.org.uk
www.lymphomas.org.uk

The UK’s only charity focused exclusively on providing specialist information and support to help lymphoma patients, their relatives, friends and carers.  They help people feel less vulnerable, more confident and more in control, which helps them cope and deal with their treatment.

Maggie’s Centres
1st Floor, One Waterloo Street
Glasgow G2 6AY
Tel 0300 123 1801

Email enquiries@maggiescentres.org
www.maggiescentres.org

Located throughout the country, Maggie’s Centres
are places to turn to for anyone affected by cancer.
You can access information, benefits advice, and emotional or psychological
support free of charge and under one roof. You don’t have to make
an appointment or be referred.

Mesothelioma.net
mesothelioma.net

Working to bring more awareness to a rare cancer, Mesothelioma. This is a comprehensive U.S. website for those suffering from Mesothelioma enabling them and their families to better understand how to identify the symptoms and cope with it. Mesothelioma is often misdiagnosed since it shares the same symptoms as pneumonia and other common illnesses.

Mission Remission

www.mission-remission.com

Mission Remission is an innovative new platform connecting & empowering cancer survivors. We provide a place to read and share experiences and practical strategies for life after cancer.

Cancer Support – Scotland
75 Shelley R0ad, Glasgow G12 0ZE
Tel 0800 652 4531
Email info@cancersupportscotland.org
www.cancersupportscotland.org

Offers information and support for cancer patients, families, friends
and health professionals. Runs a network of monthly support groups across
Scotland. Also provides counselling and complimentary therapies.

Rarer Cancer Foundation

www.rarercancers.org.uk

The Rarer Cancers Foundation exists to ensure that people with rarer cancers have access to the best services and outcomes.

Riprap
www.riprap.org.uk

Developed especially for teenagers who have a parent with cancer.

Tenovus
9th Floor, Gleider House
Ty Glas Road, Llanishen, Cardiff CF14 5BD
Helpline 0808 808 1010
Tel 029 2076 8850
Email post@tenovus.com

www.tenovus.org.uk

Based in wales, Tenovus provides a range of services to people with
cancer and their families, including counselling, an ‘ask the nurse’ service
and benefits advice.

Cancer Focus Northern Ireland
40-44 Eglantine Avenue, Belfast BT9 6DX
Helpline 0800 783 3339
Tel 028 9066 3281
Email hello@cancerfocusni.org

www.cancerfocusni.org

Provides a range of services for people with cancer and their families,
including a free telephone helpline, which is staffed by specially trained
nurses with experience in cancer care.

Yes to Life
Unit 4
The Energy Centre
Bowling Green Walk
London N1 6AL
Helpline 0870 163 2990
www.yestolife.org.uk

Yes to Life empowers people with cancer to make informed decisions about their cancer care options. We provide information to guide people through the confusing options for care and lifestyle choices.

Our aim is to help them make informed choices. We simplify the complex and facilitate access to expert knowledge.

Helpful Books

Coping with Chemotherapy and Radiation
Daniel Cukier et al
McGraw-Hill Contemporary 2004 £8.99

Gives information on how radiotherapy
and chemotherapy work, how the treatment may affect you and how to cope
with and reduce the side effects.

The Cancer Survivor’s Companion
Dr Frances Goodhart and Lucy Atkins
Piatkus 2012 £7.99Helps cancer survivors deal with the emotional and psychological impact of cancer. Full of practical advice.

The Cancer Survivor’s Handbook
Terry Priestman, Sheldon Press
2009 £7.99

For people who have completed their treatment. It looks
at some of the issues people might face after treatment, such as side
effects, diet and exercise, sex and fertility, work and support.

A Guide to Grants for Individuals in Need 2009/2010
Directory of Social Change 2009 £50.00

A directory of charities and
trusts that provide financial assistance to people in need. A copy is
available in most public libraries.

Other key reports and publications

Rethinking cancer The Big ‘C’: quantifying the social and economic impact by Helen Creighton, Brian beach and Sally-Marie Bamford

Published by ILC www.ilcuk.org.uk

Rethinking_Cancer_-_The_big_C

After the Treatment Finishes – Then What?
Article by Dr Peter Harvey, Consultant Clinical Psychologist
After the treatment finishes then what
Download a new useful resource from the Lymphoma Association to help those affected by lymphoma – Living with Lymphoma